Growing Up Without A Face

Oct 11, 2023 | Health, Videos

Five-year-old Juliana is an inspiring example of courage and determination. She was born with Treacher Collins syndrome, a rare genetic disorder that affects the development of the craniofacial structure. Her condition has meant she has endured over 30 operations throughout her short life to mediate its severity.

Juliana was born with one eye sealed shut, no cheekbones, no nasal passage, and virtually no upper or lower jawbone. Despite seemingly insurmountable odds Juliana’s parents have done their utmost to provide her with the care she needs to thrive in her environment.

The harsh reality for many children living with Treacher Collins Syndrome is that they face a lifetime of multiple reconstructive surgeries as well as long-term physical and emotional challenges. Fortunately, advances in medical technology have allowed more people with this condition to receive effective treatments and live full lives like Juliana’s family intends for her.

Juliana’s story can be seen in the documentary ‘My Beautiful Daughter’ which follows her incredible journey and how her story resonates within other families facing similar challenges. The film offers a powerful insight into how resilient individuals can be despite remarkable adversity and encourages viewers to appreciate our own unique stories of strength and courage.

We are all capable of much more than we think, so take time to appreciate all those who overcome daunting obstacles each day – like Juliana – when you watch My Beautiful Daughter today!

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David B