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Muere Elliana Rose, la hija de 10 meses de Hannah Campbell; tenía epidermólisis bullosa de unión

Elliana Rose murió a los 10 meses, según el anuncio de su madre, Hannah Campbell. La cobertura identificó su enfermedad como epidermólisis bullosa de unión, pero no publicó una causa clínica inmediata de muerte.
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Elliana Rose, hija de la influencer Hannah Campbell, murió a los 10 meses. Medios que reprodujeron el anuncio de Campbell informaron que la bebé falleció la noche del 7 de abril de 2025 y señalaron que padecía epidermólisis bullosa de unión (JEB), una forma genética de epidermólisis bullosa que causa fragilidad en la piel y ampollas. No se ha divulgado una causa clínica inmediata de su muerte.

Qué se sabe de la muerte de Elliana Rose

Campbell comunicó el fallecimiento en una publicación de TikTok, según las notas de People en Español y Univision. People en Español publicó su nota el 9 de abril de 2025 y reprodujo el mensaje de despedida de la madre: “Falleció pacíficamente anoche, envuelta en amor”. Univision ubicó el fallecimiento en la noche del 7 de abril.

En el mismo mensaje, según People en Español, Campbell expresó su dolor y enojo y pidió apoyo a la investigación de una cura. La nota informó que la publicación había superado los 12 millones de visualizaciones al momento de publicarse, el 9 de abril de 2025; esa cifra corresponde a ese momento, no a un conteo vigente.

Qué había contado Campbell antes del fallecimiento

Univision informó que el 5 de abril Campbell había dicho que Elliana no abría los ojos, no comía y apenas podía llorar. Es el relato de la madre reproducido por el medio, no una evaluación médica independiente.

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Qué es la epidermólisis bullosa de unión

La epidermólisis bullosa (EB) comprende un grupo de enfermedades raras que hacen que la piel sea frágil y propensa a ampollarse. La fricción o los golpes pueden causar desgarros y lesiones; algunas formas graves también pueden afectar mucosas y zonas internas, según el Instituto Nacional de Artritis y Enfermedades Musculoesqueléticas y de la Piel de Estados Unidos (NIAMS).

La JEB es una forma hereditaria de EB y suele transmitirse de manera autosómica recesiva, explica MedlinePlus Genetics. La enfermedad puede presentarse en subtipos con distinta gravedad y evolución:

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La información general sobre estos subtipos no permite establecer cuál tenía Elliana ni reconstruir su atención médica. GeneReviews indica que el diagnóstico de JEB se determina mediante hallazgos clínicos y pruebas genéticas; una descripción general de la enfermedad no sustituye el expediente de una persona.

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Lo que no se ha establecido sobre el caso

Los reportes disponibles identifican la enfermedad como JEB, pero no incluyen el expediente médico de Elliana ni una declaración clínica sobre la causa inmediata de su muerte. Por ello, no es posible atribuirla a una complicación concreta de la JEB a partir de la información publicada.

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En términos generales, el NIAMS señala que no hay cura para la epidermólisis bullosa y que el tratamiento busca, entre otros objetivos, controlar el dolor, atender las heridas y proteger la piel. Esos datos explican el manejo de la enfermedad en general; no describen el tratamiento recibido por Elliana.

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Fuentes

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