So What If My Baby Is Born Like Me?

Mar 10, 2024 | Health, Videos

Jono Lancaster, 26, has faced rejection and discrimination his entire life due to his rare genetic condition: Treacher-Collins syndrome. This genetic disorder prevents any development of external ear formations and cheekbones in those who have it. Jono has experienced a lifetime of bullying and hospital visits as a result of this condition.

But for Jono, the stakes are now higher than ever. Any child he fathers will have a 50% chance of having the same disorder—a thought that is both daunting and heartbreaking to him. His question becomes: What if my baby was born like me?

This question is what drives the documentary ‘What If My Baby Was Like Me?’ which follows Jono on his journey as he comes to terms with the consequences of passing on this condition to another human being. Through interviews with experts, families of those affected by Treacher Collins Syndrome, and additional support from those in the medical community, viewers are taken on an eye-opening journey into the life of someone living with Treacher Collins Syndrome—both its challenges and its triumphs.

In addition to shedding light on this relatively unknown genetic disorder, ‘What If My Baby Was Like Me?’ is also an inspiring story about resilience in the face of adversity, as well as hope for those who suffer from Treacher Collins Syndrome or know someone who does. Don’t miss your chance to watch this incredible documentary and be sure to share it with friends and family!

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David B