The Girl Whose Muscles Are Turning To Bone

  • Published 1 year ago
  • Not Rated

A rare disease is turning Luciana Wulkan into a human statute. She is suffering from Fibrodysplasia Ossificans Progressiva, or FOP. The extremely rare connective tissue disease affects just 800 people worldwide.

It is also known as the Stone Man syndrome, as the condition slowly turns muscles, tendons, and ligaments into solid bone. It is currently incurable.

But despite being diagnosed with the condition, Luciana is determined to live a normal life. She was born with a stiff neck, and struggled to move her joints as she grew. She remains positive, and even does her own makeup every day using her left hand.

She was diagnosed with the condition in 2015, as her parents watched a TV documentary about FOP, and realized their daughter has the same condition.

Her hip muscles fused when she was 7 years old, and her jaw locked three years ago. This makes eating very difficult, but she soon adapted to her new.

She enjoys being sociable and going shopping, as well as dining out with friends and family.

From Around the Web

Related Videos

Health
inside the living body
youtube icon
01:32:29
New

Have you ever wanted to see how your body looks and feels? How every one of the 30 trillion cells in your body operate? This documentary might make you vomit, but it is worth...

  • 91
  • 3 days ago
  • 9(1)
Medicine
AIDS history
youtube icon
03:52:02
Health +1

AIDS stands for acquired immunodeficiency syndrome. It is a chronic, and potentially life-threatening condition caused by the human immunodeficiency virus, or HIV. The condit...

  • 245
  • 1 month ago
  • Not Rated
Health
givepower clean water in Kenya
youtube icon
04:26

One in nine people lack access to clean water. Approximately 2.2 billion people worldwide do not have access to safe drinking water facilities. And this is happening on a pla...

  • 179
  • 1 month ago
  • Not Rated
Health
how eyes evolved
youtube icon
44:56

If you think the way you see things nowadays is the way people saw things through the history, you are wrong.As strange as it sounds, our eyes have evolved through the years....

  • 417
  • 2 months ago
  • Not Rated
Avatar

4,128 Videos / 11,076,359 Views
Tags

Related Articles
The benefits of going vegan or vegetarian are definitely something to consider. Yes, you might have harder time to meet ...
  • 467
  • 1 month ago
The plot of the book is set in Italy during the time of the Black Death (a plague resulting in deaths of 75 to 200 milli...
  • 2,642
  • 1 year ago
Some health experts even say they can perform a colonoscopy and guess the sex of the patient without knowing it beforehand
  • 2,565
  • 1 year ago
The discovery can help us understand how organs acquire such complex, yet in the same time, stable forms. It is critical...
  • 1,935
  • 1 year ago